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Belongs to: Therapist Reacts to Troubles by Ren
I don’t share a lot, and I don’t share often because I’m not into comparing misery. But I had cancer then I had long-term Covid and now I suffer from ME. Which to me manifest in constant pain and exhaustion. I’m only in year two. So I’m still figuring things out. But honestly, I think I’d trade cancer back. ME is physically spiritually and mentally crushing isolating and takes away your ability to hope. Anyway, thank you for your reaction. Ren has been huge help for me this year. Just listening to his music makes me feel like pushing on.
Hello. I am glad you shared what you are going through with us. It sounds like it is extremely tough to go through, and unimaginably exhausting having to fight illness after illness, all in a row. I also had a lot of trouble when I first started sharing with people, feeling some similar feelings to you in regards to sharing misery, but I think that I have found that it’s not so much about comparing any misery. It is more so having a safe outlet to be able to talk about my misery without having to feel guilty/judged/or like am comparing anything to anyone else. So that I have an outlet to safely let it out and not be judged for it, because I think letting it out can be therapeutic when people are actually just there to be supportive. So I thank you for finding our space safe enough for you to share in, and please feel free to continue share anything you are feeling/experiencing if you ever need/want to. We are here. I hope that you can have as good a day as possible given your circumstances. Stay strong. <3
I’m really sorry you’re going through all this. You’ve been facing one challenge after another with cancer, long-term COVID, and now ME. It’s a lot to handle, and I can’t imagine how exhausting and overwhelming that must be. Being only in year two and still trying to figure things out must make it even more challenging, as the pain and exhaustion continue. It’s understandable to feel like this new illness is crushing you physically, mentally, and spiritually. I can see why you feel like you’d trade cancer back in a heartbeat.
It’s tough to explain how ME affects your day-to-day life to others, especially when it leaves you feeling so isolated and drained of hope. The constant pain and exhaustion make it hard to imagine things getting better, and when people don’t understand or aren’t able to offer support, it only adds to that sense of isolation. Your suffering is valid, and it’s understandable that you would feel like it’s taken away your ability to hope.
I’m glad that Ren’s music has been a source of solace for you. When his lyrics resonate and help you feel like pushing on, it shows how powerful music can be. Finding something that connects with you like that is invaluable, especially when it feels like so much has been taken away. Even though it’s hard to share when you’re not into comparing misery, I’m grateful you’re sharing your story here. It shows how much strength you have, even when everything feels like it’s weighing down on you.
If you ever want to talk more or just need someone to listen, I’m here. You deserve to be heard and supported through this, and your strength and resilience are inspiring. Even when it feels like hope is out of reach, you’re doing an incredible job holding on.
I’m sorry you have ME too. I don’t know how severe you are affected but may 14th and 15th there’s an international, free online conference on ME and LongCovid: unite2fight. They will make videos available on YouTube if you can’t join online. This is the first time something so big is organised for lc and ME and I find hope in that. I have ME since 2017, and found some things that helped me. Just wanting to say, things can change and I know it’s an awful illness. Sending love.
After my best friend died from su1c1d³, I went and got an MRI because she kept telling me to go get one. I finally got my 1st MRI in 2017. I found out I was born with a few congenital defects. I won’t talk about 2 of them, but my main pain is from my spinal cord never fusing to my tailbone. So my lumbar spine never fused to my coccyx (sacrum). So my bones started rubbing and that caused inflammation and my spinal joints grew cysts where my nerves are being squished. I also was diagnosed with M.E. right after. I’m have been in constant excruciating pain daily for years! My other defects are smaller but just as painful. I just had a new MRI, my Spinal Surgeon said he can’t do surgery to fix the hole in my spine, but I can get an ablation that I need 6 nerves that exit cut and cauterized. It lasts 12-18 months verses the shots that last 2-3 on me. He also wants me to get an implant on my back muscles because they have atrophied. Idk if my insurance will cover it. I’m on irrelevant Disability. My M.E. was misdiagnosed as fibromyalgia, but I had them do all the tests and then found out it was M.E. after talking to my pain doctor. I just wanted you to know you’re not alone. My family doesn’t understand chronic pain or chronic fatigue. My own mother and I are on the outs because she is tired of hearing about it??? Idk? I told her I thought she blamed herself because I was born with this, it’s congenital. She makes it sound like it’s my fault. I can’t even talk to her anymore!
@@thegingermenace8593 I am so sorry to hear about your hard life. Even though I know you don’t want my pity because nobody wants pity. But it does take a strong person to be able to get through day after day after day of pain and suffering with no answers, long-term solutions. I appreciate your comment. It is nice not to feel alone. ME so isolating. Maybe we should exchange emails and just complain to each other. Lol. I really do hope you have a good day and appreciate you being vulnerable and sharing. Also, I just wanna say it is hard for family to understand. My husband is the epitome of health and they get tired of hearing about it too when you’re stuck in bed for weeks at a time what else is there to talk about honestly that’s why I’ve gotten into so much YouTube. It’s help my sanity these last two years.
@leslieballard9709 That’s exactly why I’ve been on YouTube & Social Media so much! It helps to talk about it with other people who know what you’re going through! I’m so isolated as well. I am either at a doctor appointment or I’m in bed. But I did buy a guitar and started learning on an app and videos online. Plus, I do something like Face Time or whatever with my guitar teacher. It has helped me so much! Even if I can only play a short time on horrible days. I just love playing around with the chords I’ve learned. Plus I leaned the plucking version of “Hey Jude” and will pass it off to my teacher tomorrow. I am in constant pain and am exhausted most the day, but I push myself until I drop at times because I just pretend I have a normal life. I try to live as much as I can. But talking to other people who are kind, know what it feels like to have Chronic Pain and M.E. which is painful in a different way. I wear myself out but no matter how much I sleep, I’m always tired and playing the guitar & talking to people and my psychologist helps a lot!
I’d love to write with each other. You can write me at
Tell me when you have my mail so I can come back in here and delete my comment. Hopefully no one takes it. Oh well!
My name is Mary FYI. I don’t remember if I introduced myself.
It’s been lovely speaking with you. Let me know when you read this. Thanks girl!
@@thegingermenace8593 just emailed you. Hope you got it. You can edit or delete this comment. Also, I forgot to tell you I’m a huge Beatles fan. I have three Beatles tattoos and my dogs name is Jude.
I also have ME from Covid, and it can feel like nobody understands the level of suffering we are going through. Im severe, in a wheelchair and everyday is a battle. Just here to tell you I hear you. No one deserves this.
@@brandongiarusso2664 you are correct. No one deserves this. Not me not you not anybody. I appreciate your honesty and vulnerability. Because I feel like the hardest part of these diseases is that not a lot of people know about ME and so it’s a very isolating disease. Honestly, the pain and the exhaustion have been nothing compared to the loneliness and isolation I felt and that saying something because you know how exhausted and how much in pain I am. I also have fibromyalgia and a blood disorder so every day is a battle. But I love this online community and that I’ve been able to make friends and have people to talk to if you’d like we could exchange emails. But no pressure at all. Just want you to know that I know part of what you’re going through. I would never try to pretend to know someone else’s pain. But take solace in the fact that there are others out there who don’t know you personally but know you’re struggles. I hope you have a wonderful day. And if not today, I hope tomorrow.
